No registrations found.
ID
Source
Brief title
Health condition
Pompe's disease, a Fontan circulation, Broncho Pulmonary Dysplasia or an Inflammatory bowel disease.
Sponsors and support
Intervention
Outcome measures
Primary outcome
Exercise capacity (Peak VO2)
Secondary outcome
Physical activity levels, quality of life, disease activity, heartfunction, lungfunction, rest metabolism, body composition, muscle strenght, endurance, fears among exercise.
Background summary
14% of Dutch children are diagnosed with a chronic disease. These children report a decreased quality of life due to problems in common well-being and physical functioning. They feel restricted in sports participation and physical functioning. Most chronic ill children have lower levels of daily physical activity and lower exercise capacity as their peers. In this study, we first measure the daily physical activity levels, exercise capacity, muscle strength, quality of life, fear of exercise, disease activity and body composition in 4 groups of chronically ill children. The diseases that are included in this study are; Pompe's disease, Fontan circulation, Broncho Pulmonary Dysplasia, and Inflammatory bowel disease.
After the first measurements, all children will participate in a tailored exercise program. This program will last for 12 weeks. After 12 weeks all measurements will be repeated to measure the effects of the training.
Study objective
Training in children with a chronic illness will increase physical functioning, physical activity levels and quality of life.
Study design
0 weeks, 12 weeks, 24 weeks.
Intervention
12 week during training program
Inclusion criteria
- > 6 years old and < 18 years old
- diagnosed with; Pompe's disease, a Fontan circulation, Broncho Pulmonary Dysplasia or Inflammatory bowel disease.
Exclusion criteria
exercise restrictions
Design
Recruitment
IPD sharing statement
Followed up by the following (possibly more current) registration
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| NTR-new | NL8181 |
| CCMO | NL70912.078.19 |
| OMON | NL-OMON49222 |