No registrations found.
ID
Source
Brief title
Health condition
IPF
Sponsors and support
Intervention
Outcome measures
Primary outcome
interview data
Background summary
This is a qualitative study exploring the needs, facilitators and barriers for communication about end of life from the perspective of patients with pulmonary fibrosis, their informal care givers and health care professionals.
In this study interviews and focus groups will be used to collect data.
Study objective
Because of the qualitative nature of this study, no hypothesis is applicable
Study design
All parcipitants will participate only once in an interview or a focus group.
Intervention
Interviews and focus groups
Inclusion criteria
In order to be eligible to participate in this study, a subject must meet the following criteria:
- IPF diagnoses by the ATS 2018 criteria
OR
- Informal caregiver of a patient with IPF diagnosed by the ATS 2018 criteria;
OR
- Bereaved informal caregiver of a patient with IPF diagnosed by the ATS 2018 criteria*;
Exclusion criteria
- Not able to speak Dutch;
- Not able to work with Pexip ;
- Patients with other chronic lung diseases;
- Patients <18 years;
- Patients on waiting list LoTX
Design
Recruitment
IPD sharing statement
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| NTR-new | NL9367 |
| Other | MEC-U : W21.018 |