Extent the current instrument for assessing autism in deafblind individuals with profound intellectual disability by Hoevenaars-van den Boom et al. (2008; 2009) to a protocol with manual for assessing autism in people with visual impairments, less…
ID
Source
Brief title
Condition
- Eye disorders congenital
- Congenital eye disorders (excl glaucoma)
- Developmental disorders NEC
Synonym
Research involving
Sponsors and support
Intervention
Outcome measures
Primary outcome
The main study parameter will be the score on the assessment instrument that
will be developed.
Secondary outcome
For some participants will we additionally assess the diagnosis of autism,
measured by consensus among experts. Finally, when available we will use
information regarding IQ, visual and auditory impairments and the syndromes
underlying the sensory impairments.
Background summary
Autism seems to be positively correlated to hearing, visual and intellectual
disabilities, and experts are often consulted about the autistic like
behaviours in people with these disabilities. The diagnosis of autism is based
on behavioural characteristics, since a neurophysiological or neurochemical
cause hasn*t been identified yet. This often leads to an over- or
underdiagnosis of autism in the multiple disabled, because the behavioural
characteristics of autism and of people with visual and/or hearing impairments
and intellectual disabilities are topographically the same. It is not yet
possible to make a proper diagnosis of autism in this group and thus to give
them proper interventions. This study will design an instrument for the
assessment of autism in people with visual and/or hearing impairments and
intellectual disabilities.
Study objective
Extent the current instrument for assessing autism in deafblind individuals
with profound intellectual disability by Hoevenaars-van den Boom et al. (2008;
2009) to a protocol with manual for assessing autism in people with visual
impairments, less severe degrees of intellectual disabilities and/or with or
without hearing impairments.
Develop criteria for scoring in this instrument for the above mentioned groups,
and give an accurate description of each group.
Study design
This study will be a semi structured observational study.
Study burden and risks
Participants will only be tested once, for only one hour approximately. Risks
will be minimal, because of the client directed approach. If stress should
appear while testing some items, this particular item shall not be further
pursued.
Montessorilaan 3
6525 HR Nijmegen
NL
Montessorilaan 3
6525 HR Nijmegen
NL
Listed location countries
Age
Inclusion criteria
Participants have an IQ below 50.
Participants are visually impaired or blind, as described by ICD-10 (WHO, 1992).
Participants have or do not have autism, as described by DSM-IV-TR (APA, 2000).
Exclusion criteria
Participants are excluded when below 5 or above 55 years of age.
In the first phase of the study, participants are excluded when no consensus among experts is reached concerning the diagnosis of autism.
Participants can only participate after signing an informed and written consent (when unable, a legel representative is asked to make the choice for them).
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| CCMO | NL39164.091.12 |