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Observational Prolonged Trial in Myotonic Dystrophy type 1 to Improve Qol Standards, a Taget Identification Collaboration.

Primary ObjectiveTo evaluate the effect of a tailored behavioral change intervention comprising CBT and physical activity on participation (as measured by the DM1-Activ scale) for severely fatigued patients with myotonic dystrophy type 1 compared to…

*Personalized orthotic care to improve functioning in patients with neuromuscular disorders*

To assess the effectiveness and cost-effectiveness of personalized orthotic care to improve functioning in patients with NMD compared to standard orthotic care.