17 results
Patients with chronic respiratory failure currently start their ventilatory support in hospital as stated in national guideline. However, as these patients are severely disabled, a stay at the hospital for several days is experienced by many as very…
Primary objectives: 1. Does vitamin D supplementation improve depressive symptoms in older persons? 2. Does vitamin D supplementation improve physical performance and functional limitations in older persons?Secondary objectives: 3. Does vitamin D…
To evaluate the effectiveness and cost-effectiveness of Energetic. Secondary objectives include evaluation of barriers and facilitators for implementation of Energetic in other settings.
Primary ObjectiveTo evaluate the effect of a tailored behavioral change intervention comprising CBT and physical activity on participation (as measured by the DM1-Activ scale) for severely fatigued patients with myotonic dystrophy type 1 compared to…
We want to investigate if it is possible to set up the entire process of home mechanical ventilation outside the hospital. This means practically that the patients will not be admitted to the hospital. The goal of this study is to answer the…
To compare group medical appointment as a novel approach in care for chronic neuromuscular patients with conventional outpatient visits, in terms of health outcomes and costs.
1. To detrrmine the applicability of standard energy expenditure prediction equations for accelerometry in measuring physical activity in children with musculoskeletal and other chronic diseases (see below).2. To develop disease specific prediction…
The aims of the study are fourfold: 1) to assess dual-task walking performance in patients with late sequelae of polio and compare this to dual-task walking performance of age-matched healthy controls; 2) to investigate the reproducibility of a dual…
The aims of this project is three-fold: 1) to assess the difference in functional ability and postural control between former polio patients with and without a history of recurrent falls; 2) to determine which risk assessment tool is the most…
The primary objective of this study is to establish the relationships between structural and neural adaptation of human skeletal muscle when muscles are exposed to overstretch and overload through exercise.
Primary: To determine the feasibility of measuring muscle strength at home with the fixed dynamometerSecondary: Determining the sensitivity of the fixed dynamometer to detect changes in disease progression in ALS during home measurement
To assess the effectiveness and cost-effectiveness of personalized orthotic care to improve functioning in patients with NMD compared to standard orthotic care.
Primary objective: To assess the feasibility and adherence of home-based monitoring of multiple aspects of disease progression in patients with ALS in order to develop a widely supported set of reliable digital parameters to capture data, collected…
Primary- To determine the validity of home-based self-monitoring of VC in patients with MND.Secondary- To determine the reliability of home-based self-monitoring of VC in patients with MND.- To evaluate the feasibility of 4-weekly home-based self-…
We aim to establish an essential step towards evidence-based and individually tailored gait rehabilitation in patients with HSP using the following objectives: 1. This study aims to identify the effect of ten 1-hour sessions C-mill training on gait…
Primary objective: (1) To describe the relative intensity of ADL and the amount of and variability in time spent at various individually determined relative physical activity intensities (low, moderate and vigorous) during ADL in individuals with…
The purpose of ALS-CarE is to make a population based inventory of the ALS patient and caregiver health care programme over the different stages of the disease. The obtained information can be used in the future to adjust and fine tune the current…