12 results
The aim of our project is to establish the feasibility, effectiveness, costs and acceptance of early case finding of CD in children attending the YHCCs in a well described region in the Netherlands, using a POC test for TG2A determination.…
To survey the clinical and biochemical characteristics of individuals diagnosed with OCTN2, CPT2, CACT or BKT deficiency or suspected with OCTN2 deficiency after NBS in the Netherlands to aid the decision on whether or not to include these disorders…
Objectives: 1) Create shared and disease-specific developmental curves with relevant and meaningful outcomes in children with brain-related disorders. 2) Develop innovative paradigms and parameters from neurophysiological, brain structure and motor…
Patients will be included in 3 prospective cohorts, cohort A, B, C and 1 retrospective cohort, cohort 0. Cohort A: The primary objective of cohort A is to show that by implementing a standard infrastructure all newly diagnosed girls with cancer (or…
The project aims are to 1) provide an integrative understanding and conceptualization of uncertainty in transgender and DSD/intersex care, and to 2) support children/adolescents, parents and healthcare professionals in recognizing, discussing and…
Primary Objective:1. To validate the HLA-DQ typing in blood taken by a fingerprick; to make it feasible in the regular Preventive YHCCs organization.2. To establish the feasibility of HLA-DQ2/8 typing in the active case-finding at the Preventive…
To investigate the effect of FCR during hospital stay, accompanied by FICare, on parental stress at discharge in parents of preterm (born before 37 weeks of gestational age) or ill (for instance with sepsis or small for gestational age) infants…
The aim of our study is to investigate whether a tailored nutritional care follow-up program in children who are being discharged from the hospital with nutritional support improves nutritional intake and status as well as feeding behaviour and…
The aim of this study is to analyze (in)activity, sleep quality and sleep duration of children during clinical admission in the Amsterdam UMC (Acute Admission Unit and regular nursing wards) in comparison with the normal situation at home.…
The aim of the study is to look retrospectively at all children who presented with high-energy trauma at the Amsterdam UMC in the past five years, how this research was conducted and what findings were noted. In addition, we want to draw up a…
Objective 1: To assess the effect of implementation of a dashboard, with (near) real-time data feedback of risk stratification tools and care processes, on relevant clinical outcomes (in-hospital mortality, ED-LOS, admission rate) and discrepancy…
This feasibility study will now evaluate its use during regular visits, gathering feedback from parents and YHCP, along with user data from the digital tool.