No registrations found.
ID
Source
Brief title
Health condition
Dementia, primary care, familiy phycian, advance care planning, shared decision making
Dementie, eerstelijnsgezondheids zorg, huisarts, gezamenlijke besluitvorming
Sponsors and support
Intervention
Outcome measures
Primary outcome
The primary outcome on care level is the proportion of patients whose needs and wishes are known and respected.
Secondary outcome
Quality of life and depression of the dementia patient
Patients an primary caregivers satisfaction with care of the general practitioner
Burden of the primary caregiver
The general practitioners satisfaction with care of the dementia patient
Quality of life of the dementia patient
Resource utilization of the dementia patient and primary caregiver
Demographics will also be meassured
Background summary
Patients with dementia have limited access to palliative care. At the end of their lives, aggressive and unwanted
interventions like resuscitation and hospitalization regularly take place. Physical symptoms in patients such as pain or dyspnea
and neuropsychiatric symptoms and depression in both patients and family caregivers are often undertreated. This threatens
the quality of life of dementia patients and their family caregivers. Palliative care can bring actual care into agreement with
patients’ and caregivers’ needs and wishes. Therefore an innovative intervention in dementia care combining the strengths of
advance care planning (ACP) and shared decision making (SDM) called Decidem will be developed. The research aim of this
project is to evaluate its effects on care, patients and caregivers, and costs. We hypothesize that Decidem will bring actual care
into agreement with patients’ and caregivers’ wishes/preferences and needs. This patient-centered, personalized intervention
may increase their satisfaction with care, decrease caregivers’ burden and increase quality of life. Decrease of under- and over
treatment, of hospitalizations and of unplanned visits may reduce costs.
Study objective
What are the effects of Decidem on the proportion of patients whose needs and wishes are known and respected, on patient
and family caregiver outcomes and on healthcare costs?
Study design
baseline meassurments at timepoint 0
Followup meassurments after three months for resource utilazation
End messurments after 6 months
Intervention
Education of the general practitioner (and practice nurse) in advance care planning and shared decision making for community dwelling elderly who live at home or in a home for the elderly
M. Vernooij
[default]
The Netherlands
030-6620846/0613610558
mvernooij@ziggo.nl
M. Vernooij
[default]
The Netherlands
030-6620846/0613610558
mvernooij@ziggo.nl
Inclusion criteria
Dementia diagnosis
In care of a general practitioner
Living at home or in a home for the elderly
65 years old
Exclusion criteria
No dementia diagnosis
Not in care of a general practitioner
Not living at home or in a home for the elderly
Younger than 65 years
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| NTR-new | NL4909 |
| NTR-old | NTR5773 |
| Other | Zonmw : 70-73305-98-420 |