No registrations found.
ID
Source
Brief title
Health condition
Experienced burden and Quality of life of caregivers of people with dementia
Neuropsychiatric symptoms of people with dementia
Sponsors and support
W.P. (Wilco) Achterberg, MD, PhD, Prof. of institutional care and elderly care medicine. Department of Public Health and Priamry Care. LUMC, Leiden,
Froukje Boersma, MD, PhD, Elderly Care Physician, Researcher, Department of General Practice, UMCG/ department of medical sciences, Groningen
Zilveren Kruis: THEIA fonds
Laurens, Rotterdam, (initiator)
Intervention
Outcome measures
Primary outcome
Carer: Self Rated burden scale, CarerQol-7D, CarerQol-visual analog scale, objective burden
Patient with dementia: Neuro psychiatric inventory
Secondary outcome
Carer: experienced health (RAND36/SF36), use of facilities and health care, quality of life (EQ5D+C),use of psychotropic drugs, depression and anxiety (center of epidemiologic studies depression (CES-D), hospital anxiety and depression scale anxiety subscale (HADS-A)
Person with dementia: basic activities of daily living and instumental activities of daily living (ADL and IADL, Katz-15), use of facilities and health care, dementia quality of life instrument (DQI), Cohen Mansfield agitation inventory -community (CMAI), geriatric deterioration scale (GDS-Reisberg), use of psychotropic drugs
Background summary
Background
Caregivers, spouses in particular, of people with dementia have to deal with a severe task. They often
care for and live with their relative or partner for a long time while this person gradually loses cognitive
ability. However, they are not trained or otherwise prepared for this burdensome role.
In Australia a seven-day program known as the “Going to Stay at Home” project was developed and
proved to have multiple beneficial effects on the caregiver and the patient with dementia. This program
takes place on an external location together with four to six other couples.
During the program, caregivers receive extensive training covering all aspects with regard to living with
and caring for someone with dementia. Psychological, as well as social and practical matters will be
discussed. At the same time, the patients with dementia follow a separate program. Meals and
evenings are spent together in a pleasant way. The follow up period lasts six months and comprises of
monthly telephone calls and two group meetings.
Objective
We want to explore the effectiveness of this intervention in the Netherlands by means of a randomized
controlled trial. The primary outcome is subjective and objective carer burden and person with
dementia neuropsychiatric symptoms. In case of a positive outcome we aim at implantation of the
program as regular and insured care.
Study objective
Is an intensive multimodel multicomponent program for caregivers of people with dementia more effective than care as usual on the well being of the carer and the person with dementia.
Study design
base line, 3 months, 6 months
Intervention
7- day residential intensive training of carers of people with dementia. The training is an intensive multicomponent and multimodel training comprising psychosocial and psycho educational interventions and training of practical skills. Parallel to this training their partner receive a program aimed at coping with the disease and pleasant activities.
Inclusion criteria
Couples of caregiver and person with dementia living together
Person with dementia: diagnosis dementia, understanding and speaking Dutch
Caregiver: understanding and speaking Dutch
Exclusion criteria
Person with dementia: agressive behaviour or wandering
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| NTR-new | NL4911 |
| NTR-old | NTR5775 |
| Other | ZonMw, Memorabel, Deltaplan Dementie : 733050601 |