No registrations found.
ID
Source
Brief title
Health condition
Acquired brain injury
ABI
Stroke
Traumatic brain injury
Niet-aangeboren hersenletsel
NAH
CVA
Beroerte
Traumatisch hersenletsel
Sponsors and support
University Medical Center Utrecht
De Hoogstraat Rehabilitation
Intervention
Outcome measures
Primary outcome
Caregiver mastery
Secondary outcome
Caregiver strain
Burden
Family functioning
Emotional functioning
Coping
Participation
Care-related quality of life
Background summary
Caregivers of patients with acquired brain injury (ABI) often experience high levels of
burden, which effects their physical and psychosocial well-being profoundly. Psychological
distress is reported mostly by caregiving spouses. Especially returning home after
rehabilitation appears to be a major hurdle for patients and their partners.
We propose a blended care (eHealth and face-to- face) intervention, which includes psycho-
education, skill-building and problem-solving, and is aimed at increasing feelings of mastery
in partners of ABI patients. The aim of this study is to implement and evaluate this blended
care support program.
We expect partners to experience an increased caregiver mastery. Furthermore, we expect
improvements on caregivers’ burden, strain, coping, care-related quality of life,
participation, family functioning and emotional functioning. For patients we expect
improvements on participation, family functioning and emotional functioning.
Study objective
The aim is to implement and evaluate a blended care (eHealth and face-to-face) support program for partners of ABI patients to increase their mastery and abilities to cope with the caregiving situation and the cognitive and behavioral problems of their partner.
Study design
T0: 2 weeks after discharge
T1: 5 months after T0
T2: 4 months after T1
Intervention
A blended care intervention which combines an online eHealth program with face-to-face counseling.
Vincent Cox
Huispostnummer W01.121 - Postbus 85500
Utrecht 3508 GA
The Netherlands
+31 (0)88 75 608 95
v.c.m.cox@umcutrecht.nl
Vincent Cox
Huispostnummer W01.121 - Postbus 85500
Utrecht 3508 GA
The Netherlands
+31 (0)88 75 608 95
v.c.m.cox@umcutrecht.nl
Inclusion criteria
Partner:
- Age at least 18 years
- (One of the) primary caregiver(s) of the patient
- Living together with the patient
- Partner of patient
Patient:
- Age at least 18 years
- Acquired brain injury
- Inpatient rehabilitation
- Expected return to the home situation
- Was able to function independently before the ABI
Exclusion criteria
Partner:
- Not able to work with a computer
- No access to a computer or internet
- Insufficient Dutch language proficiency
Patient:
- Neurodegenerative of progressive brain injury
- Insufficient Dutch language proficiency
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| NTR-new | NL5917 |
| NTR-old | NTR6197 |
| Other | : 60-63000-98-012 |