Analysis of patient reported outcome after correction of sagittal synostosis

Analysis of Patient Reported Outcome Measure after correction for sagittal suture
synostosis and validation with other outcome parameters.



Early closure of the sagittal suture results in restricted growth of the skull width

and compensatory growth of the skull length. The resulting head shape is called

scaphocephaly. Surgical remodeling of the skull is performed within the first year of life

for functional and cosmetic reasons (1).

Cosmetic results are difficult to score in an objective fashion.

An important method to asses cosmetic results to ask the patient about their satisfaction

with the cosmetic results in a standardized questionnaire called Patient-Reported

Outcome Measure (PROM)(2).



The goal of this study is to develop an outcome parameter that adequately reflects the

patients appreciation of the cosmetic result of remodeling. The questionnaire consists of

10 questions to be answered on a 5 point scale. The PROM will be validated with other

outcome parameters like Cranial Index and photographic scores.



The PROM will be send to patients between 6 and 18 years old who underwent surgery

in their first year of life in the Dutch Craniofacial Center for sagittal suture synostosis.



References


1. Wong KW, Forrest CR, Goodacre TE, Klassen AF. Measuring outcomes in

craniofacial and pediatric plastic surgery. Clinics in plastic surgery. 2013 Apr;40(2):305-

12.

2. Pusic AL, Lemaine V, Klassen AF, Scott AM, Cano SJ. Patient-reported outcome

measures in plastic surgery: use and interpretation in evidence-based medicine. Plastic

and reconstructive surgery. 2011 Mar;127(3):1361-7.

One observation between the age of 6 and 18 years

1 questionnaire