No registrations found.
ID
Source
Health condition
Palliative care, Palliatieve Zorg, Terminal care, terminale zorg,
Sponsors and support
ZonMw, Postbus 93245
2509 AE Den Haag, 070-3495111
Hogeschool Zuyd, Nieuw Eyckholt 300
6419 DJ Heerlen, 045-4006060
Huis voor de Zorg, Postbus 5185, 6130 PD Sittard, 046-4208159
2509 AE Den Haag, 070-3495111
Hogeschool Zuyd, Nieuw Eyckholt 300
6419 DJ Heerlen, 045-4006060
Huis voor de Zorg, Postbus 5185, 6130 PD Sittard, 046-4208159
Intervention
Outcome measures
Primary outcome
Critical incident method (Kemppainen):
In-depht interviews and Dialogue groups are used to find out the experienced effectivity.
Fieldnotes and observations for description of the process.
Secondary outcome
Knowledge of the the effectivity of participation experienced by representators of palliative care-users in the six Networks Palliative Care on matters of content and decision making process of the Networks.
Recommended practises and improvement suggestions for the soundboardgroups.
Background summary
Since 2001 user representatives from soundboard groups in the Networks Palliative Care are safeguarding the common interests of people in the palliative stage. User participation in the Networks Palliative Care is applied very practical, through the participation of user representatives in the soundboard groups. There are six in Limburg (NL), one soundboard group for each Network Palliative Care. Huis voor de Zorg Limburg supports the NPC's and their soundboard groups. Soundboard groups are much used as a method of user participation. But never before has been evaluated how effective this method is, and to what extent the support from Huis voor de Zorg contributes to the participation of user representatives. In this project we evaluate the effectivity of soundboard groups as a method of user participation. Furthermore we evaluate the support of Huis voor de Zorg. We develop a model for other parts of The Netherlands who also work with soundbordgroups. But not only for Networks Palliative Care but also for different environments.
Study objective
The purpose is to evaluate the effectivity of participation experienced by representators of palliative care-users in the six Networks Palliative Care on matters of content and decision making process of the Networks. And to make improvement suggestions for the soundboardgroups.
Study design
First phase: 12 interviews and 2 dialoguegroups with mebers of the soundboardgroups.
Second phase: 7 interviews and 1 dialoguegroup with members of the Networks Palliative Care and the advisor Huis voor de Zorg .
Intervention
Interviews, Dialoguegroups, recommended practises and Improvement suggestions for the soundboardgroups.
Inclusion criteria
Experience in a Soundboardgroup or Network Palliative Care and having motivation to participate in the research.
Exclusion criteria
Not enough experience in the Soundboardgroup or Network Palliative Care, less than one year mebership or participation in less than five meetings.
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| NTR-new | NL3041 |
| NTR-old | NTR3189 |
| Other | ZonMw : 70-71800-98-104 |
| ISRCTN | ISRCTN wordt niet meer aangevraagd. |