Published:
Last updated:
x
ID
NL-OMON30330
Source
ToetsingOnline
Brief title
Sjogren-Larsson syndrome
Condition
- Neurological disorders congenital
- Vision disorders
- Encephalopathies
Synonym
Nvt
Research involving
Human
Sponsors and support
Primary sponsor
:
Academisch Medisch Centrum
Source(s) of monetary or material Support
:
Phelpstichting
Intervention
Keyword
:
Qualitiy of Life, Retinopathy, Sjogren-Larsson syndrome, Spasticity
Outcome measures
Primary outcome
x
Secondary outcome
x
Background summary
x
Study objective
x
Study design
x
Study burden and risks
x
Public
Academisch Medisch Centrum
Postbus 9101
6500 HB Nijmegen
Nederland
Postbus 9101
6500 HB Nijmegen
Nederland
Scientific
Academisch Medisch Centrum
Postbus 9101
6500 HB Nijmegen
Nederland
Postbus 9101
6500 HB Nijmegen
Nederland
Listed location countries
Netherlands
Age
Adolescents (12-15 years)
Adolescents (16-17 years)
Adults (18-64 years)
Children (2-11 years)
Elderly (65 years and older)
Inclusion criteria
Sjogren-Larsson syndrome, classical phenotype
Exclusion criteria
None
Design
Study type
:
Observational non invasive
Masking
:
Open (masking not used)
Control
:
Uncontrolled
Primary purpose
:
Diagnostic
Recruitment
NL
Recruitment status
:
Pending
Start date (anticipated)
:
Enrollment
:
20
Type
:
Anticipated
Approved WMO
Application type
:
First submission
Review commission
:
CMO regio Arnhem-Nijmegen (Nijmegen)
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| CCMO | NL14487.091.06 |