The objective of this study is to make a first step in clarifying the information needs regarding the end of life.
ID
Source
Brief title
Condition
- Other condition
Synonym
Health condition
aandoening kanker
Research involving
Sponsors and support
Intervention
Outcome measures
Primary outcome
Needs for information.
Secondary outcome
none
Background summary
Discussing the end of life is difficult for people. It is often unclear what
the information needs of people with regard to the end of life are. Yet being
well informed about the last stage of life is important. Information about the
end of life can diminish the fears of dying people and their caregivers. It
gives them a mainstay and helps them to make well-informed decisions.
Study objective
The objective of this study is to make a first step in clarifying the
information needs regarding the end of life.
Study design
The information needs of patients and their caregivers will be explored in a
qualitative study.
The study takes place in Twente. Respondents will be selected by means of
purposive sampling.
The data is collected by means of interviews. The goal is to conduct 15
interviews. The maximum duration of an interview is one hour. The guide-line
for the interviews is a topiclist which is based on a literature-review about
the information needs regarding the end of life. Topics which are discussed in
the interviews are the last stage of life, life expectancy, the last days
before dying and the dying process.
Data analysis will be done following the method of the Grounded Theory.
According to this research approach there is an alternation of data collection
and -analysis during the study.
In order to guarantee the quality of the study, the following, for qualitative
research usual, objectivity strategies are used: the researcher receives
interview training, a log-book will be kept during the research, a digital
record of the interviews will be made, investigator triangulation, peer reviews
and (during the interviews) member-checking will take place.
The interviews will be conducted during the period February-April 2007. The
analysis of data and writing of the report on the study will endure till June
2007. The report on the study will be finished in July 2007.
Study burden and risks
The duration of the interviews is maximum one hour. The interviews can be
confronting for patients and their caregivers, because death and dying will be
discussed. Emotional reactions may occur. When participants need someone to
talk to, they can contact the researcher or the independent doctor.
postbus 85060
3508 ab
Nederland
postbus 85060
3508 ab
Nederland
Listed location countries
Age
Inclusion criteria
Patients:
- > 18 years
- Dutch speaking
- diagnosed with cancer
- worse prognosis
- life expectancy < 6 months;Carers
- > 18 years
- Dutch speaking
- Carer of a patient who is diagnosed with cancer
- Carer of a patient with a worse prognosis
- Carer of a patient with a life expectancy < 6 months
Exclusion criteria
- Patients with dementia or psychiatric diseases
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| CCMO | NL16127.041.07 |