To identify factors that have an influence on the reproductive decision-making for a subsequent pregnancy of women having a child with congential anatomical anomalies.
ID
Source
Brief title
Condition
- Congenital and hereditary disorders NEC
- Pregnancy, labour, delivery and postpartum conditions
- Anxiety disorders and symptoms
Synonym
Research involving
Sponsors and support
Intervention
Outcome measures
Primary outcome
Factors that influence reproductive decision-making for a subsequent pregnancy:
1. repetitive risk;
2. strength of wish for offspring;
3. prenatal testing and genetic counseling;
4. severity of the congenital anatomical malformation(s);
5. time elapsed since the birth of the afflicted child (2 or 5 years after);
6. symptoms of posttraumatic stress disorder;
7. the specific cognitive coping style (monitoring versus blunting);
Secondary outcome
1. Anxiety, depression, somatic complaints;
2. Quality of life;
3. Adaptation.
Background summary
Which factors have an impact on the decision-making for a subsequent pregnancy?
•repetitive risk (10-15%, 25% or 50%)?
•strength of wish for offspring?
•prenatal testing and genetic counselling?
•severity of the malformation?
•time elapsed since the birth of the afflicted child?
•symptoms of PTSD?
•specific cognitive coping (monitoring versus blunting)?
Study objective
To identify factors that have an influence on the reproductive decision-making
for a subsequent pregnancy of women having a child with congential anatomical
anomalies.
Study design
Retrospective design.
Study burden and risks
Women will have a face-to-face semi-structured interview, which will last
maximally 1,5 hours. Then a set consisting of 3 questionnaires will be given.
It will take participants approximately 30 minutes to fill these in.
Dr. Molewaterplein 60
3000 CB ROTTERDAM
Nederland
Dr. Molewaterplein 60
3000 CB ROTTERDAM
Nederland
Listed location countries
Age
Inclusion criteria
Dutch mothers of children with Congential Diaphragmatica Hernia or with Esophageal Atresia, both with or without associated anomalies will be asked to participate. Their children are 2 or 5 years old at the time of inclusion.
Exclusion criteria
1. Mothers of children diagnosed with other congenital (anatomical) anomalies than a Congenital Diaphragmatic Hernia or Esophageal Atresia,
2. Mothers of children of ages other than 2 or 5 years,
3. Mothers from other ethnic origins than the Dutch.
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| CCMO | NL13812.078.06 |