To support future scientific research into late effects of treatment for childhood cancer
ID
Source
Brief title
Condition
- Other condition
Synonym
Health condition
de registratie en biobank zijn ondersteunende structuren voor wetenschappelijk onderzoek naar breed scala van late effecten
Research involving
Sponsors and support
Intervention
Outcome measures
Primary outcome
NA
Secondary outcome
NA
Background summary
Survival rates for childhood cancer have risen beyond 75%; unfortunately, a
growing number of long-term survivors of these diseases are faced with adverse
health effects from their cancer treatments. Seven Dutch centers for pediatric
oncology and stem cell transplantation have joint forces in a multidisciplinary
cooperative group called LATER: Late Effects following childhood cancer
treatment, within the pre-exisiting structures of the Dutch Childhood Oncology
Group (DCOG).
The goals are defined as follows: to offer adequate patientcare for this new
group of patients and to conduct scientific research into late effects of
treatment for childhood cancer.
This proposal describes the DCOG-LATER registry and biobank, both intended to
support future scientific research and to ameliorate patientcare for survivors
of childhood cancer.
Study objective
To support future scientific research into late effects of treatment for
childhood cancer
Study design
Cohortstudy with retrospective and prospective in-flow of childhood cancer
survivors and prospective follow-up, including an extra tube of blood for the
biobank.
Study burden and risks
Burden: completion of a questionnaire and obtaining an extra tube of blood or a
saliva sample
Risks: very small chance to detect yet unknown conditions ("coincidental
finding") when body material is processed in the future
Meibergdreef 9
1100 DD Amsterdam
NL
Meibergdreef 9
1100 DD Amsterdam
NL
Listed location countries
Age
Inclusion criteria
- diagnosis of childhood cancer or related conditions and survival of at least 5 yrs post-diagnosis
- treated (in part) by a pediatric oncologist in one of seven participating academic hospitals
- resident of the Netherlands at the time of diagnosis
- age at diagnosis 17 years or younger
Exclusion criteria
diagnosis of childhood cancer with survival less than 5 years, age at diagnosis >17 years or diagnosis while residing in foreign country
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| CCMO | NL23633.018.08 |