1. To evaluete the clinical and cost effectiveness of 4 models of case management for persons with dementia and their main informal caregiver. 2. To evaluete the effectiveness of the 'dementiewjizer', an internet application that enables…
ID
Source
Brief title
Condition
- Dementia and amnestic conditions
Synonym
Research involving
Sponsors and support
Intervention
Outcome measures
Primary outcome
- Frequency and severity of behavioural problems of patients (NPI-Q symptoms)
and the stress this causes to informal carers (NPI-Q distress)- --
Psychopathology (GHQ12) in the caregiver
Secondary outcome
- Quality of life (pt: QoL-AD en EQ-5D+c, carer: EQ-5D), and functioning
(Katz-ADL)
- Care load of informal carers (CarerQoL)
- Met and unmet care needs of informal carers (CANE)
- (Cost of) care usage
Background summary
Dementia care is currently undergoing a transition in which better integrated
(collaborative) care is
implemented, or is being developed, in a number of regions. Improvement of
dementia care is a highly
important priority for elderly persons in the networks of AMC and VUmc.
Dementia is a chronically
devastating condition that has great consequences for the people suffering from
it, and for their
families and society. As a result of the ageing population, the number of
people with dementia will
almost double and dementia is already the most costly condition for society in
health care. The current
reactive and fragmented dementia care is insufficiently utilising the available
opportunities to improve
the well-being and quality of life of people suffering from dementia. Maybe
casemanangement and integrated
care are the best fitting answer. There is still unsufficient knowlegde about
the clinical- and cost effectiveness of these interventions. In addition, it is
unknown which model of casemanegement works best and against what costs.
Study objective
1. To evaluete the clinical and cost effectiveness of 4 models of case
management for persons with dementia and their main informal caregiver.
2. To evaluete the effectiveness of the 'dementiewjizer', an internet
application that enables informal caregivers to find appropriate care services
and thereby increase their own functioning.
Study design
(observational) multi cohort study.
Study burden and risks
Compared to it's potential benefits the burden of participation in these
evaluation is limited. There are no risks associated with participation.
van der Boechorststraat 7
1081 BT Amsterdam
NL
van der Boechorststraat 7
1081 BT Amsterdam
NL
Listed location countries
Age
Inclusion criteria
Informal caregivers (healthy persons):
1. Taking main responsibility for informal care
2. Good command of Dutch
Patients:
1. Diagnosed by a GP or medical specialist.
2. Informal care provided
3. Good command of Dutch
Exclusion criteria
Informal caregiver:
1. bedridden or terminal illness;Patients:
1. terminal illness
2. long term admission to a nursing or elderly home expected within a period of 6 months
3. case management is not permitted in usual care regions
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| CCMO | NL32949.029.10 |