The current study aims to fill some of this gap by comparing family functioning in young people with MUPS to family functioning in young people with medically explained physical complaints and healthy young adolescents. Other family factors that areā¦
ID
Source
Brief title
Condition
- Somatic symptom and related disorders
- Family issues
Synonym
Research involving
Sponsors and support
Intervention
Outcome measures
Primary outcome
1. The first primary outcome measure is family functioning measured by the
Family Assessment Device-N (Epstein et al, 1983). This is a questionair of 60
self-report items on a 4-point likert scale scored (1 = totally disagree, 2 =
disagree, 3 = agree, 4 = completely agree). All family members fill in the FAD.
Scores are summed for each subscale ore there is an average score calculated.
For the scores on some scales, scores first have to be mirrored. A higher score
means better family functioning.
2. The second primary outcome measure for measuring family functioning is an
adaptation of the Family Adaptability and Cohesion Evaluation Scales (FACES),
the Family Dimension Scale (GDS) (Neighbor Meyer & Hermans, 1988). This scale
is completed by all family members. It is a self-report list of 44 items that
comprise three scales (cohesion, adaption and social desirability). The
questions are scored on a 4-point likert scale from "never true" to "always
true" about the current perception of family functioning and the ideal
perception. For social desirability only the current perception accounts.
Secondary outcome
1. The autonomy experienced by young people is measured by the Adolescent
Autonomy Questionnaire-B (Noom et al, 2001). It is a self-report questionnaire
comprising 15 items with three dimensions of autonomy that are being
distinguished: (1) attitudinal autonomy or the extent to which the adolescent
himself can attain a goal, provide alternatives to consider and take a decision
(eg "I make quick choices. "), (2) emotional autonomy or the extent to which
the adolescent has confidence in his own choices and goals (eg" If I disagree
with others, I say that. "), and (3) functional autonomy or the extent to which
the adolescent can develop strategies to one's own goal (eg "I usually go right
to my goal.").
2. The Frost Multidimensional Perfectionism Scale (Frost & Marten, 1990) is a
self-report questionnaire comprising 35 items which has six dimensions of
perfectionism that can be distinguished: 1. The Concern over Mistakes (CM), 2.
Personal Standards (PS) 3. Parent Expectations (PE) scale. 4. Parental
Criticism (PC) scale. Doubting of Actions 5 (D) 6. Organization (O).
3. The CBSA (perceived competence scale for adolescents) (Treffers et al, 2002)
consists of seven subscales each consisting of five items (35 items total). For
each item, two groups of youths are described. The younger marks to which group
of young people he / she belongs and whether he belongs "completely" or "a
little" to the group. For the present study the academic skills subscale will
be used.
4.De reaction of parents towards odolescents with SOLK measured by the Illness
Behavior Encouragement Scale (Walker & Zeman, 1992). It is a questionnaire with
12 items maesuring the behavioral response of parents to children who are ill
or sickly. The list has a parent and child versions.
5. The 4 Dimensional Symptom Questionnaire (Terluin, 1998) is a questionnaire
that was developed within the general practice and consists of 50 items, 16
items for Distress, 6 items for depression, 12 items for anxiety and 16 items
for Somatization.
6. By the youth experienced physical symptoms are being maesured using the
Somatic Complaint List-2 (Jellesma, et al, 2007). The SCL-2 is a self-report
questionnaire in English and Dutch, which was established through observations
of school teachers. For this study, the youth version was also changed into an
parent version indicate to what extent they think their child is experiencing
physical symptoms.
Background summary
Medically unexplained physical symptoms (MUPS) frequently occur within the
health service. Despite the fact that in recent decades more research has been
conducted in this field, relatively few studies have focused on MUPS in
children and young adolescents. However, good reasons exist to research MUPS in
children and young adolescents separately from adults, especially since
research has shown that children can develop significant and long lasting
complaints which can be very disabling and may have a negative impact on their
development. Children and young people with MUPS also constitute a considerable
expense and burden to the health service. Inextricably connected to children
and young adolescents with MUPS are their families. Family therapy is often
mentioned in the (international) literature in the context of diagnosing and
treating MUPS, and has a long tradition in this respect. Nevertheless, little
fundamental research has been conducted. This tradition is mostly based on
clinical experience and on limited and controversial research.
Study objective
The current study aims to fill some of this gap by comparing family functioning
in young people with MUPS to family functioning in young people with medically
explained physical complaints and healthy young adolescents. Other family
factors that are thought to be related to MUPS will also be compared.
Study design
This study is a cross-sectional study in which families are invited to
participate once. Data collection is done by research students for their thesis
under the supervision of the principal investigator.
Study burden and risks
Completing the questionnaires will take between 40 and 60 minutes. Patients
will be offered to administer the questionnaires at home. This in order to
minimize the burden.
For the SOLK patients there is a one-time consultation with a psychologist for
diagnosis / classification. This interview will take approximately 30 minutes
to 60 minutes.
There are no / minimal risk associated with this research. This is because no
interventions take place and the burden is minimal. Moreover, subjects can, at
any given time withdraw and accessibility of psychologist is guaranteed by
principal investigator.
Van Riebeeckweg 212
1213 XZ Hilversum
Nederland
Van Riebeeckweg 212
1213 XZ Hilversum
Nederland
Listed location countries
Age
Inclusion criteria
- Families with healthy adolescents between 12 and 16 years
- Families with adolescents between 12 and 16 years with MUPS
- Families with adolecents between 12 and 16 years diagnosed with a chronic medical condition like epilepsy, asthma or diabetes type 1 and under treatment of a specialist
- A minimum of 1 brother ore sister
- 2 parents / guardians who are at least 5 years together
Exclusion criteria
-Part from the patient, one ore more of the other family members currently is being treated by a medical specialist for a physical or mental disorder.
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
Register | ID |
---|---|
CCMO | NL33183.097.11 |