- to determine possible differences in the results of the ABILHAND kids questionnaire between parent, occupational therapist and rehabilitation doctor- variance of the results in time
ID
Source
Brief title
Condition
- Encephalopathies
Synonym
Research involving
Sponsors and support
Intervention
Outcome measures
Primary outcome
Estimates of variance components.
Secondary outcome
nvt
Background summary
The ABILHAND-Kids questionnaire is a measure of manual ability for children
with upper limb impairments. The scale measures a person's ability to manage
daily activities as a test focused on the child's difficulty perceived by the
child's parents.The questionnaire has been validated in cerebral palsy children
(age 6-15).The questionnaire was developed using the Rasch measurement model.
The ABILHAND kids consists of 21 manual activities perceived by the children
parents. Each item is answered on a 3-level scale (impossible, difficult, easy)
and item difficulty increases with bimanual involvement. There is no specific
training needed.
In the literature there is insufficient evidence concerning the reliability of
the ABILHAND kids. The test retest reliability was only described by the
Pearson's r correlation coefficient (0.91). There remain insufficiencies about
the interpretation of the results and further research is needed.
Study objective
- to determine possible differences in the results of the ABILHAND kids
questionnaire between parent, occupational therapist and rehabilitation doctor
- variance of the results in time
Study design
All children receive rehabilitation therapy. The 21 items of the ABILHAND kids
questionnaire are recorded on video in a regular therapy session of 30 minutes.
Of each child two video's are recorded, the last one 1 to 2 weeks after the
first. All raters watch both video's and the results between the three raters
are compared. The parents also fill in the questionnaire based on their memory.
Study burden and risks
The risks of scoring the questionnaire and the video observation are negligible
and is a non invasive measurement tool. The questionnaire is yet a frequent
used measurement tool in rehabilitation settings for children (including
Zwolle). Because the video's are recorded in regular therapy sessions, the
extra burden is marginal. These children are also used to video recording on
regular basis to evaluate i.e. hand function.
Hyacinthstraat 66a
8013 XZ Zwolle
NL
Hyacinthstraat 66a
8013 XZ Zwolle
NL
Listed location countries
Age
Inclusion criteria
- children with spastic unilateral and bilateral cerebral palsy
- GMFCS level 1 - 5
- age between 4-16 year
- IQ > 60 (without major intellectual deficits)
Exclusion criteria
- Dyskinetic/atactic cerebral palsy
- intervention assisting hand 6 months prior of the study (Botulinum toxin, surgery)
- hearing disorder/loss
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
Register | ID |
---|---|
CCMO | NL35028.075.11 |