Martial arts training for boys with Duchenne Muscular Dystrophy * a feasibility study.

Duchenne muscular dystrophy (DMD) is a progressive X-linked disorder
characterized by progressive muscle wasting and weakness, resulting in loss of
functional abilities. Functional deterioration leads to loss of independence
and a reduced quality of life. Previous studies have indicated that physical
training programs delay functional deterioration. Nevertheless, the level of
inactivity increases as boys and men with DMD get older. This results in
reduced participation on both physical and social level. Therefore, a training
program aimed at optimally using one*s capacity, slowing down physical
deterioration and improving psychosocial wellbeing, may have great benefits for
boys and men with DMD. We think that a physical and psychosocial training
program, based on martial arts, can have positive effects for boys and men with
DMD.

The primary objective of this study is to evaluate the safety and feasibility
of 3 months martial arts based training program for DMD patients. The secondary
objective is to gain a first impression on the program*s ability to optimally
use one*s capacity, slow down physical deterioration and improve psychosocial
wellbeing, and to evaluate participant experiences and compliance, in order to
see if there is a base to conduct the training on a broader scale.

Explorative feasibility study

a 3 month martial arts based training program for DMD patients.

The risks associated with participation are negligible. The burden of
participation is low, as the intervention consists of a 1.5 hour weekly
training session, which is comparable to regular sport participation. Expected
benefits are improved physical and psychosocial health.