Acquiring knowledge about the health of older adults with intellectual disabilities over time and associated factors.
ID
Source
Brief title
Condition
- Other condition
Synonym
Health condition
Lichamelijke en geestelijke gezondheidsaandoeningen bij mensen met een verstandelijke beperking.
Research involving
Sponsors and support
Intervention
Outcome measures
Primary outcome
Acquiring knowledge about the health of older adults with intellectual
disabilities over time and associated factors.
Secondary outcome
The secondary objectives are described in 5 themes.
1. Cardiovascular disease
Identify the prevalence, incidence and course of cardiovascular risk factors,
cardiovascular diseas and cardiovascular mortality in older aduts with ID, and
gain insight into the relationship with related factors across the themes.
2. Psychological problems and psychiatric disorders
Identify the prevalence, incidence and course of psychological problems and
psychiatric disorders in older adults with ID, and gain insight into the
relationship with related factors across the themes.
3. Frailty
Identify the prevalence, incidence and course of frailty in older adults with
ID, and gaining insight into the relationship with related factors across the
themes.
4. Physical activity, fitness and musculoskeletal disorders
Identify the prevalence, incidence and course of musculoskeletal disorders and
the degree of physical activity and fitness in older adults with ID, and gain
insight into the relationship with related factors across the themes.
5. Nutrition and nutritional state
Identify the prevalence, incidence and course of food-related problems in older
adults with ID, and gain insight into the relationship with related factors
across the themes.
Background summary
The life expectancy of people with intellectual disabilities is increasing, and
they now almost reach the same age as the general population. However earlier
results of the Healthy Ageing and Intellectual Disabilities (HA-ID) Study
(MEC-nummer: 2008-234 en 2011-309, Erasmus MC) show that the increase in life
expectancy is not always a healthy one. Older adults with ID are very frail,
and we see a high incidence of chronic multimorbidity, low physical fitness
levels and a lot of problems in performing daily activities. However, little is
known about important risk factors for health problems and how the health of
older adults with ID changes over time. More knowledge is necessary to optimize
the care for older adults with intellectual disabilities. Longitudinal research
regarding the health of older adults with intellectual disabilities is
therefore of utmost importance. Therefore the current study *Healthy Ageing and
Intellectual disabilities (HA-ID), the follow-up*, aims to collect longitudinal
data of the health of older adults with intellectual disabilities.
Study objective
Acquiring knowledge about the health of older adults with intellectual
disabilities over time and associated factors.
Study design
Prospective longitudinal observational cohort study
Study burden and risks
This study examines the health of the participants over time. Most measurements
of the original HA-ID study will be repeated, and supplemented or replaced by
new measurements (based on the current insights). Participants will undergo
several different measurements during a time frame of one week. The
participants will wear an ActiWatch (watch like device) and ActiGraph (device
that measures physical activity). They will undergo a physical fitness
assessment, a physical examination (participants of Abrona and the remaining
participants of Ipse de Bruggen and Amarant undergo the tests to examine the
ACR criteria for osteo-arthritis twice), a structured observation of eating and
swallowing (this observation will be recorded on video for approximately 40
participants of Ipse de Bruggen), and a blood- and hair sample will be
obtained. The participant or their caregiver is interviewed about depression
and anxiety. The participant will undergo 6-8 X-rays of the hips and the knees.
Caregivers will also be asked to complete various other questionnaires, and we
will collect data from files. Many measurements do not differ from usual
diagnostic activities. The risks are therefore minimal and comparable to a
visit to a physical therapist, physician or behavioural scientist.
's-Gravendijksewal 230
Rotterdam 3015CE
NL
's-Gravendijksewal 230
Rotterdam 3015CE
NL
Listed location countries
Age
Inclusion criteria
Participation in the HA-ID study of 2008
Exclusion criteria
Severely ill, limiting participation
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| Other | NL trialregister, registratienummer is NL8564 |
| CCMO | NL71218.078.19 |