This empirical-philosophical project aims to provide new ways of making sense of the chronicity or timelessness of chronic pain of young people aged 16-25. By combining philosophical reflection with qualitative research, it will decipher 1) how…
ID
Source
Brief title
Condition
- Other condition
Synonym
Health condition
chronische pijn
Research involving
Sponsors and support
Intervention
Outcome measures
Primary outcome
A qualitative description of *what it is like to/what it means to* live with
chronic pain as a young person (aged 16-25), and suggestions on how this
chronic experience could be meaningfully captured in a narrative.
Secondary outcome
NA
Background summary
This project contributes to breaking the silence surrounding chronic illness.
It specifically focuses on chronic pain in adolescents and young adults aged
16-25 as a case study. Many young people with chronic pain struggle to make
themselves understood by others, for the following reasons: 1) Chronic pain
often involves an unclear etiology. 2) Various chronic conditions seem to fit
in *normal aging* processes, and therefore conditions such as chronic pain are
habitually associated with older people. Young people with chronic pain
therefore often struggle to be taken seriously. 3) A chronic condition such as
chronic pain typically does not develop progressively over time, which makes it
very difficult to tell a *good story* about it. Chronic conditions seem to trap
patients in a seemingly endless, timeless enduring, which people without a
chronic illness often find hard to understand and relate to.
Study objective
This empirical-philosophical project aims to provide new ways of making sense
of the chronicity or timelessness of chronic pain of young people aged 16-25.
By combining philosophical reflection with qualitative research, it will
decipher 1) how chronically ill people experience time and 2) how this time
experience can be recounted in a narrative. This study aims to both deepen our
understanding of chronic illness experiences and to contribute to better
healthcare.
Study design
The project will address the research question by combining philosophical
analysis with qualitative research. The qualitative research will include 1) an
interview study with young people (aged 16-25) with chronic pain focusing on
their lived experiences of chronicity, and 2) a narrative assignment, in which
the participants will be asked to narrate their experiences for about two weeks
in a medium of their own choosing.
Study burden and risks
Individual interviews require a considerable investment of time (30 minutes to
1,5 hours per session) and mental focus on the part of the respondent.
Secondly, the interview situation can be physically exhausting for respondents
who have trouble sitting down for protracted periods of time. Thirdly,
respondents may find it burdensome to talk about their personal issues
regarding their pain experiences. Participants might even be prompted to relive
distressful past events.
Warandelaan 2
Tilburg 5037 AB
NL
Warandelaan 2
Tilburg 5037 AB
NL
Listed location countries
Age
Inclusion criteria
- age 16-25
- currently suffer from chronic pain (3 months or longer)
- Have (reasonably) good cognition/language understanding and therefore able to
answer questions in an interview that is in line with their communicative
abilities
- are treated advised for chronic pain either at CIR Eindhoven or ETZ Tilburg
- capable of giving informed consent
Exclusion criteria
- major depressive disorder
- insufficient cognitive/linguistic level
- not capable of providing informed consent
Design
Recruitment
Followed up by the following (possibly more current) registration
No registrations found.
Other (possibly less up-to-date) registrations in this register
No registrations found.
In other registers
| Register | ID |
|---|---|
| CCMO | NL87378.028.24 |