The CPCHILD-18+ is sufficiently tested for its psycometric characteristics to be used in clinical practice and research
ID
Bron
Verkorte titel
Aandoening
health related quality of life of non-ambulatory adults with severe disabilities e.g. cerebral palsy
Ondersteuning
Onderzoeksproduct en/of interventie
Uitkomstmaten
Primaire uitkomstmaten
Scores of the health-related quality of life instrument that is tested for its psychometric evaluation
Achtergrond van het onderzoek
Rationale: Because of a higher life expectancy of non-ambulatory children with severe disabilities there is a growing need for an adult-specific Health related quality of life-measure
Objective:
Objective 1. Assess the face and content validity of the CPCHILD-18+: Evaluate the suitability of the items of the CPCHILD-DV for use with non-ambulatory adults in a Dutch population, to establish the elimination, modification, or retention of each item and addition of new items (content adaptations) for the CPCHILD-18+; Assess the sensibility of the CPCHILD-18+, namely its comprehensibility, clarity of instruction, suitability of the response scale, and ease of usage in a Dutch population.
Objective 2. Assess the test-retest reliability, internal consistency and known groups-validity of the CPCHILD-18+ in a Dutch population.
Study design: a cross-sectional study
Study population: Direct support persons and/or parents of non-ambulatory adults with severe disabilities.
Doel van het onderzoek
The CPCHILD-18+ is sufficiently tested for its psycometric characteristics to be used in clinical practice and research
Onderzoeksopzet
not applicable
Onderzoeksproduct en/of interventie
not applicable
Algemeen / deelnemers
Wetenschappers
Belangrijkste voorwaarden om deel te mogen nemen (Inclusiecriteria)
Adult primary caregiver (parent or direct support person) of a person:
• with severe disabilities e.g. cerebral palsy, syndromes, profound intellectual and multiple disabilities (
• age from 18 years up
• non-ambulatory (GMFCS level IV or V )
for at least the last six months. The caregiver has to have sufficient understanding of the written Dutch language.
Belangrijkste redenen om niet deel te kunnen nemen (Exclusiecriteria)
Exclusion criteria includes the presence of a progressive neurological disorder or severe concurrent illness or disease in the non-ambulatory adult, not typically associated with the underlying disability
Opzet
Deelname
Opgevolgd door onderstaande (mogelijk meer actuele) registratie
Geen registraties gevonden.
Andere (mogelijk minder actuele) registraties in dit register
Geen registraties gevonden.
In overige registers
| Register | ID |
|---|---|
| NTR-new | NL6576 |
| NTR-old | NTR6962 |
| Ander register | UMCG Research Register : 201700844 |