Digital Cohort of Rheumatic Disease

The DICODE is a prospective observational cohort study in patients with inflammatory rheumatic diseases. The objective is identifying patient demographics influencing adherence to the MijnReuma Reade smartphone application. The app is developed as a tool for self-monitoring and consists of a weekly questionnaire to measure the disease activity. Primary outcome is adherence at 3 months, secondary outcomes are adherence at 6 months, patient empowerment and patient satisfaction. Patient recruitment will start in March 2020 at Reade Centre for Rheumatology located in Amsterdam, Netherlands. Estimated inclusion time will be 18 months with a target of 186 patients. Eligible patients are diagnosed with Ankylosing Spondylithis, Psoriatic Arthritis or Rheumatoid Arthritis, speak and write Dutch and own a smartphone with IOs or Android. Exclusion criteria is participating in other interventional study. The study is on December 18th 2019 approved by the METc of the VUmc.

Patients demographics (age, sex, health literacy etc.) influence adherence rates of mobile self-monitoring

baseline, 3 months and 6 months

At inclusion patients are asked to use the MijnReuma Reade smartphone application. The app provides the possibility to complete a weekly questionnaire. This questionnaire has been derived from the MDHAQ/RAPID3© questionnaire. It contains the RAPID3 and additional questions regarding fatigue, sleep, morning stiffness, anxiety, stress, social participation and self-reported flare. The app was designed to function on both the iOS and Android and met all guidelines for submission to the Dutch Apple App and Google Play stores. The app will send users a notification every week, prompting them to login using their username and password or touch-ID using fingerprint identification to answer questions related to inflammatory arthritis. If users have not answered their weekly questions in 24 hours, they will receive another notifications at 24 hours and 1 week to remind them to complete the questions. The app is integrated within the Reade Electronical Medical Record. Results of the questionnaire are therefore viewable by the rheumatologist. All patients are able to follow their disease activity over time in the dashboard function of the app.