Parents’ experiences with daily use of a stander in children with cerebral palsy to prevent hip dislocation.

Rationale: Hip displacement is common in children with cerebral palsy and can progress to hip dislocation. The natural risk for hip dislocation is estimated between 15% and 20%. Hip dislocation often occurs at a young age. Therefore, management of hip surveillance must be early to be effective in reducing the risk for hip dislocation. Evidence for conservative interventions is limited. Results of some studies indicate that daily standing in abduction for 60-90 minutes per day positively affects the hip stability. It may, however, be very challenging for parents and children to persist. Previous studies have indeed shown that adherence is not optimal.

objective: To gain insight in parents’ experiences with daily use of a stander in young children with cerebral palsy to prevent hip dislocation. In addition, to identify barriers and facilitators to improve future adherence of the daily use of the stander.

study design: qualitative study design, with semi-structured interviews

study population: parents of young children with cerebral palsy with experience of daily use of a stander to prevent hip dislocation

main parameters: parents experiences, barriers and facilitators and adherence

Semi-structured interview study to get insight in parents’ experiences of daily use of a stander in young children with cerebral palsy to prevent hip dislocation. In addition, data will be used to identify barriers and facilitators to improve future adherence of the daily use of the stander.
Hypothesizes are not applicable.

One time point

Not applicable