Inadequate palliative care for elderly patients can result in unplanned hospitalisation, reduced quality of life and patients not dying at their place of preference. Barriers to appropriate palliative care can be found at the organisational,…
ID
Bron
Verkorte titel
Aandoening
Palliative care; frailty, palliatieve zorg, kwetsbaarheid,
Ondersteuning
Onderzoeksproduct en/of interventie
Uitkomstmaten
Primaire uitkomstmaten
Number of patients with an unplanned hospitalisation in the six months after inclusion.
Achtergrond van het onderzoek
Inadequate palliative care for elderly patients can result in unplanned hospitalisation, reduced quality of life and patients not dying at their place of preference. Barriers to appropriate palliative care can be found at the organisational, communicational, educational and cultural levels. The aim of the The PalliSupport care pathway is to overcome these barriers by providing patient-centred care by means of timely identification of patients who could benefit from palliative care, a comprehensive palliative assessment and follow-up until death. Furthermore, PalliSupport aims to enhance knowledge of health care providers and improve collaboration between care settings.
The primary objective is to evaluate the effect of the PalliSupport care pathway on unplanned hospital readmission, deaths at place of preference, quality of life, symptom burden and informal caregiver burden.
This study will be a pragmatic multicentre stepped-wedge randomised trial (SW-RCT) in 5 hospitals and surrounding regions (clusters). 300 patients will be included in the care a usual phase and 300 in the intervention phase.
Study population: Dutch-speaking patients aged ≥ 65, acutely admitted for 48 ≥hours to the departments of internal medicine, geriatrics, cardiology, pulmonary disease, gastro-enterology or oncology, and found eligible for palliative care, as determined by the Surprise Question (SQ) and Supportive Palliative and Palliative Care Indicators Tool (SPICT) criteria.
Intervention: The intervention consists of a transitional care pathway that starts during an acute hospitalisation. The intervention consists of timely identification with the Surprise Question and SPICT criteria. After identification, conversations about end-of-life preferences will be initiated and an integral palliative assessment will be performed by the palliative care team. The patient will be discussed in a weekly multidisciplinary team meeting (MDT), which is attended by the patient’s primary care physician and home care nurse, and an individualised palliative care plan will be formalised. During the MDT the intensity of follow-up will be determined. Before discharge the patient and their informal caregiver will receive a copy of the individualised care plan; a copy will also be sent to the primary care physicians and home care services. After discharge the patient is followed up by the palliative care team and discussed in the MDT until this is deemed no longer necessary. Primary care professionals can consult the palliative care team again if new problems occur.
The primary outcome is the occurrence of (at least one) unplanned hospitalisation in the six months after discharge. Secondary outcomes are dying at the place of patient’s preference. Furthermore, the quality of life, symptom burden, palliative outcomes, caregivers’ burden and health care utilisation will be assessed.
Doel van het onderzoek
Inadequate palliative care for elderly patients can result in unplanned hospitalisation, reduced quality of life and patients not dying at their place of preference. Barriers to appropriate palliative care can be found at the organisational, communicational, educational and cultural levels. The PalliSupport care pathways aims to overcome these barriers by providing patient-centred care by means of timely identification of patients who could benefit from palliative care, a comprehensive palliative assessment and follow-up until death. Furthermore, PalliSupport aims to enhance knowledge of health care providers and improve collaboration between care settings.
Onderzoeksopzet
Patients will be asked to answer questionnaires at baseline, two weeks after discharge, one, three and six months after discharge (or until death).
Onderzoeksproduct en/of interventie
A transtional palliative care pathway. The transitional care pathway starts during admission and follows patients both in primary and secondary care.
Publiek
Bianca Buurman
AMC, Kamer F4-108
Amsterdam 1100 DD
The Netherlands
+31 (0)20 5665991
b.m.vanes@amc.nl
Wetenschappelijk
Bianca Buurman
AMC, Kamer F4-108
Amsterdam 1100 DD
The Netherlands
+31 (0)20 5665991
b.m.vanes@amc.nl
Belangrijkste voorwaarden om deel te mogen nemen (Inclusiecriteria)
1) Age (≥65 years);
2) Acutely admitted for ≥48 hours to the departments of internal medicine, geriatrics, cardiology, pulmonary disease, gastroenterology or oncology;
3) Positive SPICT™ criteria: a hospital admission in six months prior to admission,functional status decline and weight loss (65-79 years: two or more positive criteria, >80 years: 1 or more positive criteria);
4) Ability to read and speak the Dutch language;
Belangrijkste redenen om niet deel te kunnen nemen (Exclusiecriteria)
Patients who are not able to answer questionnaires due to severe cognitive impairment (MMSE<15) due to diagnosis of dementia or active delirium during the entire admission, will be excluded. Furthermore, patients who live far from the hospital and therefore cannot be visited by the palliative care team will be excluded.
Opzet
Deelname
Opgevolgd door onderstaande (mogelijk meer actuele) registratie
Geen registraties gevonden.
Andere (mogelijk minder actuele) registraties in dit register
Geen registraties gevonden.
In overige registers
Register | ID |
---|---|
NTR-new | NL7425 |
NTR-old | NTR7667 |
Ander register | ZonMw: 844001103 : METC: NL 66739.018.18 |