A national quality registry for spondyloarthritis in daily practice in the Netherlands

Spondyloarthritis (SpA) is a chronic and potentially disabling, inflammatory rheumatic disease, which needs long term monitoring and treatment. Despite its high prevalence and substantial socioeconomic impact, information on the quality of care delivered to these patients in daily practice in the Netherlands is scarce.

The aim of SpA-Net is to provide transparency on treatment and outcome of this disease in the Netherlands. Through MIJNREUMACENTRUM, a web-based patient medical file and at the same time a quality management system, patient outcome and pharmacovigilance data will be prospectively gathered from unselected SpA patients in daily practice.

Evaluation of daily practice, improve quality of care to patients with spondyloarthritis

Real-life, collection of data at each regular visit, scheduled according to treating rheumatologist

None, daily care. Through MIJNREUMACENTRUM, a web-based patient medical file and at the same time a quality management system, patient outcome and pharmacovigilance data are prospectively gathered from spondyloarthritis patients in daily practice. These include patient reported outcomes, clinical examination and laboratory investigations.