People with aphasia have problems with communicating. Because communication is very important in the society, these group suffers from a smaller social network, diminished social participation and as a result of this, loneliness, a loss of autonomy…
ID
Bron
Aandoening
Aphasia. This is a language disorder caused by brain damage as a result of a stroke of trauma, in areas that are responsible for language. It manifests itself in problems with understanding of speech, talking, reading and/or writing.
Aphasia, social network, favorite communication partners, social participation
Afasie, sociaal netwerk, favoriete gesprekspartners, sociale participatie
Ondersteuning
Onderzoeksproduct en/of interventie
Uitkomstmaten
Primaire uitkomstmaten
The Frenchay Aphasia Screening Test (FAST) will be executed to measure the aphasia severity and type. The Social network Inventory of Sarah Blackstone will be executed to map the social network of the participants.
Achtergrond van het onderzoek
In this research the social networks of 20 people with aphasia, minimal of 6 months post onset will be investigated using an adapted version of the Social Networks Inventory of Sarah Blackstone and Mary Hunt-Berg. The questions will include frequency of contact, conversation strategies, communication situations and conversation goals concerning all communication partners and specifically their favorite ones. The provided information could be helpfull in the development of strategies to prevent a further decrease and promote an increase of the social network of persons with aphasia.
Doel van het onderzoek
People with aphasia have problems with communicating. Because communication is very important in the society, these group suffers from a smaller social network, diminished social participation and as a result of this, loneliness, a loss of autonomy, role changes, additional reliance on family members and depression.
To prevent a further decrease of the size of the social network and promote an increase, it is important to investigate the current social network of people with aphasia and characteristics of their favorite communication partners.
Onderzoeksopzet
Just one timepoint.
Onderzoeksproduct en/of interventie
N/A
Publiek
Wetenschappelijk
Belangrijkste voorwaarden om deel te mogen nemen (Inclusiecriteria)
1. Men and women;
2. Dutch speaking;
3. 20 years and older;
4. ≥ 6 months post onset of aphasia;
5. Diagnosed as aphasic by a speech and language therapist;
6. Recovered enough to be able to understand and answer questions with aid of pictograms, verbal and non-verbal communication.
Belangrijkste redenen om niet deel te kunnen nemen (Exclusiecriteria)
1. Global aphasia or Wernicke's aphasia;
2. Score of 0-5 score on the ‘comprehension’ scale of the Frenchay Aphasia Screening Test (FAST, Enderby 1987);
3. Aphasic as a result of of a brain tumor;
4. Severe cognitive decline or mental health problems.
Opzet
Deelname
Opgevolgd door onderstaande (mogelijk meer actuele) registratie
Geen registraties gevonden.
Andere (mogelijk minder actuele) registraties in dit register
Geen registraties gevonden.
In overige registers
| Register | ID |
|---|---|
| NTR-new | NL3693 |
| NTR-old | NTR3863 |
| Ander register | METC Atrium Orbis Zuyd : 13N13 |
| ISRCTN | ISRCTN wordt niet meer aangevraagd. |