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"Unbearable suffering and euthanasia". A qualitative study of perceptions of patients, physicians and doctors consulted for a second opinion.

PurposeThe aim of this study is to gain insight on an empirical basis into the concept of unbearable suffering in situations where a request for EAS is made from the point of view of the patient, the treating physician, and the consulted doctor and…

Duchenne from the third Decade (3D)
Functioning, quality of life and needs of health care in adults with Duchenne Muscular Dystrophy and their informal caregivers.

The main research questions are:1a. What are the functional status on all levels of ICF and quality of life of adults with DMD?1b. What are determinants of functional status and quality of life?2a. What are burden of care and quality of life of…

Needs and problems of patients with a mitochondrial disease in the Netherlands.
Open interviews according to the grounded theory approach

Engelse tekst volgt indien onderzoeksvoorstel definitief moet worden voorgelegd aan de METC (in overleg met mevrouw Lilian Damen).

*Interculturalisation: Diagnostic Evaluation with Ethnic minority patients with Low back disabilities* (IDEAL)

The objective of this study is to generate knowledge about factors related to culture, that hinder the use of rehabilitation care. This follow-up study focuses on patients of non-Netherlands origin that are not any more under treatment, as they have…

Survey: Patient Knowledge and Preferences in Regards to Colorectal Cancer in the Setting of Ulcerative Colitis

1.What are ulcerative colitis patients* understanding of their risk of colon cancer and the benefit of colonoscopy?2. What is ulcerative colitis patients* threshold of cancer risk before accepting colectomy in the setting of dysplasia?3. What are…

The Impact of Psychological and Medical Factors of Women having a Child with a Congenital Anatomical Malformation on Subsequent Pregnancy Decision-Making: a psychological evaluation.

To identify factors that have an influence on the reproductive decision-making for a subsequent pregnancy of women having a child with congential anatomical anomalies.

Burden of ERCP;
Preferences for treatment of common bile duct stones

The aim of this study is: 1) to determine the burden of ERCP in patients undergoing ERCP (descriptive study) and 2) to determine patients preferences for treatment strategy of CBDS (Discrete Choice Experiments).

Renal Insufficiency Therapy in Children: Quality Assessment and Improvement.

To improve the quality of care for children with End Stage Renal Disease by central registration and frequent intervision.

The feasibility of a physical activity program for men with lower urinary tract
symptoms and/or erectile dysfunction who show up at the OPD urology of the VU medical center with a lack of
physical activity.

1. determine how many male patients visiting the OPD urology for LUTS and/ or ED lack a certain amount of physical activity2. measure the willingness of those patients to follow a program for increasing their physical activity3. discover factors…

Evaluation of an electronic device to objectively monitor energy expenditure, physical activity, unrest and autonomic nervous system function in patients admitted to the Intensive Care

The objective of the study is to explore the performance of the Sensewear device during various levels of activation of the autonomic nervous system and sedation in a population patients admitted to an ICU.

Information about complications as decision supporting information for patients.

The objective of this study is to assess whether patients regard complication information as important and use complication information when choosing a hospital, related to other factors such as distance and waiting time. Related to this objective…

Long term consequences of subarachnoïd hermorrhage:;Long-term effects on quality of life after a subarchnoid hermorrhage: the influence of cognition

The primary research question is:-What is the influence of cognitive functioning on on the quality of life after SAH on the long term?Two secundary research questions are:-Is there a specific neuropsychological profile after SAH on the long term?-…

EUropean study on Care and Complications in patients with type 2 Diabetes in Primary Care - Pilot study

To test the feasibility of the set-up and logistics of the EUCCLID study.1. To assess quality indicators of clinical DM2 care2. To perform questionnaires on quality of life and psychological well-being in DM2 patients in various European countries3…

Long-term follow-up in patients with congenital anatomical malformations.

Evaluation of long-term complaints and problems on medical, surgical, psychological, social-emotional, conditional and motoric area in patients with one or multiple congenital malformations. More knowledge on long-term morbidity will lead to better…

a pilot study into the effects and feasibility of the use of Tiscover® (tissue-engineered autologous skin substitute) for chronic ulcers (venous ulcers, diabetic ulcers and decubitus ulcers).

to determine the efficiency and feasibility of an autologous tissue engineered skin substitute in healing chronic ulcers (decubitus-, diabetes foot- and venous- ulcers) compared to usual wound care therapies (e.g.: off-loading, wound cleansing,…

Global Longitudinal Registry of Osteoporosis in Women

The goal of this research is to improve our understanding of the risk and prevention of osteoporosis-related fractures among female residents of 9 countries who are 55 years of age and older. Research Objectives* Describe the distribution of risk…